About Us
Sickle Cell Foundation of Minnesota is a not-for-profit 501(c)3 community-based patient advocacy organization founded in 2015 in response to a long-standing need for a programs and services that support the sickle cell community
About Sickle Cell Foundation of MN
A not-for-profit 501(c)3 community-centered patient advocacy organization with programs and services that serve the needs of the sickle cell community and provide a supportive system of education, advocacy, and empowerment.
Our executive board, advisory committees, workgroups and volunteers, are comprised of a diverse group of patients, caregivers, health care professionals, and other passionate experts and stakeholders in our community.
Executive Board
Sickle Cell Foundation of Minnesota Board of Directors, also referred to as the Executive Board, consists of a group of passionate, skilled, and informed individuals who jointly supervise the activities and financial concerns of the organization.
Board powers, duties, and responsibilities are determined by government regulations and the organization’s own constitution and bylaws. *Members of the board of directors receive no monetary compensation for their participation as executive board members.
Space to make your
greatest impact.
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Passion Is What Drives Us
We’re not just determined about doing great work.
We also love doing it.
Advisory Boards and Workgroups
Sickle Cell Foundation of Minnesota consists of several advisory committees and workgroups. Committees and workgroups meet regularly and serve to inform and direct the work of the Foundation. Advisory board members and workgroups are selected based on the needs of the organization.
Executive Advisory Committee
The Executive Advisory Committee consists of known leaders from a variety of sectors who share their experience and expertise related to business matters concerning the organization and assist with ensuring that we are in alignment with current business trends in non-profit space.
Members of the executive advisory committee meet regularly and receive no monetary compensation for their participation as advisory members.
We are currently accepting letters of interest for our Executive Advisory Committee. If you are a member of the business community, particularly in finance, law or education, we invite you to contact us below.
Medical Advisory Committee/Workgroup
The Medical Advisory Committee (MAC) is composed of physicians, APP’s, RN’s Researchers, and other healthcare professionals who share their experience and expertise on behalf of patients and families affected by sickle cell disease.
The MAC serves to provide concrete, fact based medical opinions related to improving outcomes in healthcare settings for individuals living with sickle cell disease. Members of this board are not an extension of a client’s medical team and DO NOT provide direct medical advice to individual patients or clients of SCFMN.
The MAC is also tasked with overseeing the MN SCD Healthcare Collaborative/ Workgroup. This workgroup’s mission is to identify healthcare quality improvement strategies that positively impact and improve medical outcomes.
Members of the medical advisory committee and workgroup meet regularly and receive no monetary compensation for their participation as advisory members.
We are currently accepting letters of interest for our Medical Advisory Committee. If you are a member of the medical community and you are interested in joining our MAC team, please contact us below.
Financial Advisory Workgroup
Legislative Advocacy Workgroup
The purpose of the LAW workgroup is to bring together community advocates and legislative experts to develop local legislative strategies. This team of advisors will assist the Foundation in developing legislative agendas and strategies that focus on equitable health practices and funding that address the issues and gaps that impact disease outcomes and quality of life for communities impacted by sickle cell disease.
Members of the Legislative Advisory Committee meet throughout the year as legislative needs may dictate and receive no monetary compensation for their participation.
We are currently accepting recommendations and letters of interest from those interested in joining this committee. Please contact us to learn more.
The purpose of the CAB is to be the eyes, ears, and voice of the community. CAB members assist with community projects and help to inform the larger work of the organization.
We believe that the patient and caregiver voices are at the core of our mission. Their lived experiences, learned wisdom and recommendations help us to form programs, services, and activities that align with our mission to improve overall quality of life. Committee members consist of patients, caregivers, and other community members who are personally impacted by sickle cell disease and are comfortable with sharing their ideas and have displayed the ability to speak thoughtfully and deliberately in a manner that represents the interests of all individuals affected by sickle cell disease.
The community advisory board should not be seen as a place where an individual committee member brings their personal grievances about clinic/hospital experiences to be dealt with and solved. Personal experiences should be used as examples when discussing programs, services, or broader advocacy needs across the community. Patient advisory members should also bring experiences and perceptions of other individuals and families to the discussion. The committee should not be seen as a support group.
Members of the community advisory committee typically meet monthly or as Foundation needs dictate and receive small stipends for their participation.
We are currently accepting letters of interest, recommendations, and referrals to join our Community Engagement Workgroup. For more information, please contact us.
Partnerships & Collaborations
(past & current)
Our Memberships
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The purpose of this committee is to provide expertise pertaining to financial matters of the organization. The Finance Workgroup will assist with the planning and coordination of fundraising events